WELCOME TO THE HOME OF
DEIRDRE MEDINA-RIVERA
Deirdre Valeria was born in Puerto Rico in 2007, and was diagnosed with Spinal Muscular Atrophy when she had a respiratory arrest at 5 months of age. SMA is a fatal rare genetic illness for which there is NO cure. Deirdre batles the SMA Monster everyday.
Deirdre has NO EXPIRATION DATE, she is very intelligent and a true DIVA. We don't know for how long she will be with us, but we know she lives every second to the fullest! Come on in and explore our diva's world!
LATEST NEWS & HEADLINES FROM THE DIVA's BLOG
HERE WE HAVE NO EXPIRATION DATES
Come and discover Deedee's world. It is a world filled with adventures, fights, never giving up, and neverending drama...
Oh, yes, there is ALWAYS drama!
But above all, it is a world filled with changes and hope.
Diagnosed SMA T1 at 5 months of age in January 2008
FOLLOW US!
WHAT's NEW in the DIVA's WORLD
DIARY
Updated constantly so you always know what Deirdre has been up to and her future plans
DEIRDRE
Here you will find EVERYTHING about Deedee: Her story, equipment, therapies, and likes.
SMA
Information about SMA, facts, and R&D that is going on in the world.
PHOTOS & VIDEOS
Come on in and travel to each special moment of the Diva's life!
DONATIONS
Help us maintain Deirdre's quality of life. Here is the "wishlist" of Deedee's wants and needs.